Articles by Amy Shinneman

Uncertainty

Most of my life, I lived with a huge cloud of uncertainty hanging over me. Living with a disease that is nameless is a very heavy weight to carry. Not…

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Navigating reality

Last week my son and I set out on a quest to shop for all the dorm necessities for his upcoming move into his new home. I had done this…


Stillness

Summer is always such a beautiful but busy time. Much more seems to be expected out of life when the temperatures are warm and there is much to do. I…


Nameless

Some of the kindest memories I have are of acts of kindness from those who I do not even know their name. I also cannot remember what they looked like,…


Chameleon

As a child, I was fascinated with chameleons. I thought it was so neat that they could change colors to adapt to their environment. When I got older, I realized…


A beautiful moment

Some moments in life take your breath away. Beautiful, special moments in time that are worth more than any sum of money. Last week, I was fortunate enough to experience…


I shouldn’t be surprised

I shouldn’t be surprised, but I am. It is happening in real time. To me, to us. My husband sees it too. I can tell it breaks his heart, but…


Seamless

In a meeting I was in recently, when discussing advocating for the disabled community, I explained to the group that what disabled people are looking for regarding accessibility is a…


Solo

A big dream of mine is to do a solo trip. Not because I do not enjoy the company of my family and friends, but I think it would be…


First-ever

Recently, I was invited to be a part of something new. Something close to my heart. I live with a type of muscular dystrophy called Bethlem Myopathy. Bethlem Myopathy is…