Articles by Amy Shinneman

Recently, I was invited to be a part of something new. Something close to my heart. I live with a type of muscular dystrophy called Bethlem Myopathy. Bethlem Myopathy is…

I long to know you, to get comfortable with who you are, but you are ever changing, escaping from me just as I start to sync with you. Most of…

Parenting is interesting. In many ways it feels like I blinked, and my kids were grown. Certainly, it can feel that way. It all goes so fast. Living in it,…

Having a senior in high school means often living in the “lasts” moments. The last first day of school, to the last run around the home track, and everything in…

If there is anything that living with a disability has taught me, it is that we are all far more capable of what we allow ourselves to imagine. At times,…

As I mentioned in Part 1, there were some concerns going into my first pregnancy living with Muscular Dystrophy. The second time around was no different, but this time the…

What is it like being pregnant and parenting while living with Muscular Dystrophy? That is a question I often get from those living with MD who are considering becoming pregnant….

When we were in Colorado in 2019, I went adaptive snow skiing for the first time. On this visit, I knew I wanted to try and fit that in again….

The time has come and gone for our last school spring break trip. Senior year for my youngest is flying by. We collectively decided to visit Colorado again. We went…