Uncertainty
Most of my life, I lived with a huge cloud of uncertainty hanging over me. Living with a disease that is nameless is a very heavy weight to carry. Not…
Read MoreMost of my life, I lived with a huge cloud of uncertainty hanging over me. Living with a disease that is nameless is a very heavy weight to carry. Not…
Read MoreLast week my son and I set out on a quest to shop for all the dorm necessities for his upcoming move into his new home. I had done this…
Summer is always such a beautiful but busy time. Much more seems to be expected out of life when the temperatures are warm and there is much to do. I…
Some of the kindest memories I have are of acts of kindness from those who I do not even know their name. I also cannot remember what they looked like,…
As a child, I was fascinated with chameleons. I thought it was so neat that they could change colors to adapt to their environment. When I got older, I realized…
Some moments in life take your breath away. Beautiful, special moments in time that are worth more than any sum of money. Last week, I was fortunate enough to experience…
I shouldn’t be surprised, but I am. It is happening in real time. To me, to us. My husband sees it too. I can tell it breaks his heart, but…
In a meeting I was in recently, when discussing advocating for the disabled community, I explained to the group that what disabled people are looking for regarding accessibility is a…
A big dream of mine is to do a solo trip. Not because I do not enjoy the company of my family and friends, but I think it would be…
Recently, I was invited to be a part of something new. Something close to my heart. I live with a type of muscular dystrophy called Bethlem Myopathy. Bethlem Myopathy is…