A rare life
With Feb. 29 being Rare Disease Day, I felt like it was a good time to talk about rare diseases and what it’s like to live with one. I’ve mentioned…
Read MoreWith Feb. 29 being Rare Disease Day, I felt like it was a good time to talk about rare diseases and what it’s like to live with one. I’ve mentioned…
Read MoreOpenly talking about and sharing my disability and all that comes with it is fairly new to me. In fact, if you knew me growing up you may even be…
Life lessons. We all have them. We all have things in our lives that have taught us hard learned lessons. Often, those things are the things we thought were the…
Growing up, my mom was a fantastic cook. She learned from her mom, and our family has a lot of delicious recipes that have been passed down many generations. My…
Many of my earliest memories are of being at a doctor’s office or recovering from surgery at a hospital. If you are someone who has spent time seeing doctor after…
Independence. It’s a word that can take on so many different meanings. Something you will hear when listening to the current fight within the disability community is that we are…
We have all experienced difficult seasons in our lives. Seasons when living in the moment, we think, how am I ever going to get through this? It’s unbearable. There is…
As we begin the new year each year, our minds are often in renewal mode. In the past, I found that I had this magnified motivation to want to change…
Growing up, I had many hospital stays. After my extensive foot and ankle surgeries, I would usually have to stay for about a week. At the time, they didn’t send…
Recently, I was interviewed for an article regarding my Muscular Dystrophy diagnosis. One of the interview questions led me to the thought and realization that every good quality that I…