Articles by Amy Shinneman

So, we celebrated briefly and got a picture snapped to document this incredible moment in time. As soon as that picture was taken, it felt like my mind reconnected with…

As we started to find our rhythm and settle into the 26.2-mile journey to the finish, I made sure I had my things in order for a smooth ride. The…

About a year ago, I participated in the 127th Boston Marathon. My husband, a.k.a. my legs for the race, and the other part of my team, was of course by…

My husband is my “editor in chief” – as I jokingly like to call him – for all my blog posts. Really, he just reads through what I’ve written to…

A few weeks ago, I was once again headed to my regular neurology appointment. I dread those appointments because it’s a hike from the car to the office. Often, I…

Have you ever been in a situation where you were unable to move or speak because you were so terrified? It is a horrific feeling, and one that can bring…

I often feel like it’s hard to come up with the right words to talk about all the complexities of my thoughts I have surrounding my disability. As a lifelong…

With Feb. 29 being Rare Disease Day, I felt like it was a good time to talk about rare diseases and what it’s like to live with one. I’ve mentioned…

Openly talking about and sharing my disability and all that comes with it is fairly new to me. In fact, if you knew me growing up you may even be…